Anyway, onto the foot...Dr dT says that Sam has a Hallux Varus on the left foot which does present in a percentage of the RTS kids. He does not feel that the foot itself is deformed and that, should the foot not be so turned inwards, the "bump" on the outside would not be apparent. The Hallux Varus is usually rectified by a surgical procedure called an Osteotomy (not dissimilar to the Delta Phallynx surgeries Sam had on his thumbs). The procedure, however, is usually only done at 3 years of age....so that's an awesome fifteen month's notice!! (BTW - Sam was 21 months on Tuesday). Sure, I'll probably be a little less enthusiastic closer to the time but after the TSC surgery, I feel we can tackle anything. Okay....maybe except for vomiting. In addition to Sam's rather scary-looking hyperextensible elbow joints, he also has a degree of Ligamentous Laxity which Dr dT says can sometimes cause elbow dislocations but gave Sam's a good feel and said they appear fine at this point. He also watched Sam walk a bit and says that he's using his foot just fine and, if anything, the foot might cause the slightest delay with walking but he doesn't foresee it effecting Sam's walking at all. We see Dr dT again in July for more x-rays of his feet and hips (Sam's, not Dr dT's).
On to physio, Sam had an *awesome* physio session yesterday. There were no tears, no screams and (monstrous YAY!) no throwing up. Sam and I have religiously being doing his stretches at least once or twice every day and Heidi said it showed. Sam spent a great deal of time on his knees and Heidi went through the exercise of standing up from a kneeling position...that was just yesterday. This morning I had him on his knees in the same position and very next thing, in the blink of an eye, he had pulled himself up into a standing position!!! I put him back onto his knees and next thing he was standing again...I even tried to take a pic, but he's so quick to get up that I missed every time. Then later this afternoon, he was sitting on the floor with his back up against the couch (sofa) and calmly turned around to pull himself up into a standing position...Oh My, where has my baby gone? So much progress in such a little time, it almost makes me afraid that, after so much bliss, we're going to be dealt a whopper of a blow to bring us back to earth. Well, might as well enjoy it while it lasts then... :)
One issue that is going nowhere fast is, of course, the throwing up. We had a completely vomit-free day yesterday, but made up for by two today. And, yes, I am still doing battle with the whole Pediasure/Nestargel saga. I keep deciding to give up and just revert back to the S26 as I have weighed Sam every day for the past couple of days and he's just stagnating at 9.0kg. But, Smurf having the sweet-tooth that he has, do you think he's prepared to drink the plain ol' S26 after delicious chocolate and vanilla flavoured Pediasure? No way! I tried to weigh him again this morning but I think our scale is on the blink for sure because, after approximately twenty-something attempts, Sam weighed anything between 8.9 - 10.5Kg's (such a small variance, you know). And trying to get Sam to stand still for the 4 seconds it takes to display the weight is another task altogether but eventually about fifteen of the twenty attempts settled on 9.3kg's, so I am going with this one for now. Which then also means that the Pediasure is probably making a bit of a difference which in turn meant I had to give it another go. So tonight I first let the Nestargel cool (which I don't usually do because it starts forming a "film" on the top as soon as it cools down) before adding the Pediasure. I literally just finished mixing it two minutes ago and it looks like it might be the solution. Here's holding thumbs!
Here's an interesting fact : To date I have so far spent approximately 21,600 hours making Nestargel & Formula! Phew! I suddenly feel exhausted....but first, some pics :)
Brampies is convinced that Sam is going to either start crawling or walking any day now and so spends a decent amount of time each day doing therapy-type play with Sam. Gotta love him!
This is that precious moment that I missed snapping, but it was from this position that Sam managed to stand up. I'm on a mission to capture the whole thing!
And a random shot of my most scrumptious cutie pie!