Sam. Conqueror. Overcomer.

On the 15th May 2009, Samuel Christian made his way into this world...two month's premature and in severe respiratory distress. Within hours, Sam was diagnosed with Rubinstein-Taybi Syndrome - a very rare congenital disorder, of which little was known. The diagnosis together with the immediate challenges Sam faced to thrive became our core focus and it was with joy and thankfulness that we eventually brought Sam home, after nine weeks in the NICU.

As time pressed on, it became obvious that Sam's development was falling behind that of his RTS peers. Shortly before his 5th birthday Sam underwent a brain scan and it was confirmed by a paediatric neurologist that in addition to Rubinstein-Taybi Syndrome, Sam also has Cerebral Palsy related to his premature birth, as well as Autism.

This blog chronicles our journey through these challenges...
SAMUEL - COMPLETE IN GOD
Our world has crashed, been blown apart.
This can't be happening....why us? Why now?
Your fragile life shaken before it could barely start,
How do we get through this...please, Lord, tell us how?

Drowning in our sorrow, waiting for answers that just don't come.
Our baby "special needs"? It simply can't be true!
The heartache overwhelms us, we're left feeling cold and numb.
The diagnosis tells us little - these children are so few.

But then we finallyget to touch you, to see your precious face
And all the heartache and questions fade, replaced with love and pride.
It's obvious from the very start you're showered in God's grace,
And with His love and guidance, we'll take this challenge in stride.

When once we couldn't pronounce it, Rubinstein-Taybi's become our norm.
When once the future seemed dark, we now welcome the journey as having an RTS angel brings lessons in unexpected form.

Our world has crashed, been blown apart!
This IS happening....to us.....right now!
We've been blessed with a gift, so precious from the very start. How do we get through this? Here's how.....
By believing in a God, so merciful and great,
By trusting that He's right beside us as we journey through the narrow gate.
By believing His love for us is not determined by a human frame,
By trusting that we draw Him near by merely calling His name. This precious baby we asked God for,
Prayed he'd be perfect and complete.
And, as Samuel means "God hears", He's laid His answer at our feet.

(Nicky de Beer : 27/05/2010)

Monday, March 28, 2011

Caution! Downpours with a chance of flooding!

The NSWS (National Smurf Weather Service) has issued flood warnings for Smurfville in the Western Cape caused by Cyclone SamSmurf...

From the NSWS :
  • Approximately 2,880 hours ago Smurfville was hit by a low pressure system bringing with it heavy torrential downpours.
  • The downpours continue on a daily basis, resulting in devastating floods throughout Smurfville and causing extensive damage to carpets, multiple car interiors, multiple lounge suites and bedding, not to mention onslaughts at one or two random public places. 
  • Residents of Smurfville are fast succumbing to feelings of hopelessness and desperation as they struggle through every day life amidst knee-deep floods and the unrelentless downpours.
  • The floods are expected to continue for several more days, if not months, unless some sort of urgent flood relief is sourced.
For further details pertaining to flood relief donations/assistance, refer to wwwww.Don't-mind-me.I-talk-nonsense-to-cope.com

2 comments:

  1. I'm so sorry, Nicky. It is terrible...the vomit was one of the worst things about Natalie's young years, and poor Sam has had it last so long. I'm praying for complete healing. God knows what's going on with Sam, and he knows how to heal it. I'm also praying for God's peace for you during this challenging time. It's hard to see past this moment and time to when things will be better, and I pray that you will get a glimpse of that light, to give you strength to endure. Hugs and blessings, Cindy :)

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  2. Thanks Cindy for your encouraging words and prayers xxx

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