Sam got it all a little mixed up and thought he was taking part in some sort of pirate dress-up story "Aye Aye Matey....where's me patch?"
"What? No pirates? Well thats something to smile about."
Aaaannnddd....we're still doing the clingwraped/freezer bagged bathing - although I am not sure how much longer we can keep it up. With all the funny acrobatics and gymnastics it takes for us to undress Sam, bath him and get him dressed again while all the while holding those two extremely active arms still, our bodies are being stretched into angles not meant for human formation. If it was Summer it would be easier to just give him a sort of mini-shower in the bath, but alas it is not Summer and pretty darn freee-e-e-z-zing. I've even threatened to go by 20 different babygro's and vests (20 being the number of days until the wires come out of Sam's thumbs) and at the end of each day simply cut the clothing off him. Luckily we've not yet reached such desperate heights.
On a more serious note - we had a bit of a setback at Sam's appointment with Dr Carter on Monday. In between removing the old dressing and putting the new ones on, the wire in Sam's right thumb (which sticks out slightly from the tip of his thumb with a little hook to prevent the pin becoming covered by a layer of skin and also making it easier to remove the wire when the time comes) became hooked on Sam's jumper and of course, the second he moved his hand the wire pulled out by 5mm or so. Sam howled in excruciating pain and it took forever for us to settle him down again. Dr Carter reassured us that it would not cause any problems with the healing of the finger as the wires go quite deep into the thumb, but obviously the accident has now made the thumb even more tender and painful for Sam. I think I had also set my expectations a little too high with regards to the result I thought we'd see and so when I saw that Sam's thumbs are really quite far from being straight, together with Monday's little accident I just sunk into an awful pit, filled with self-reprove for making the decision to have the operation in the first place. But, thankfully, I have a wonderful friend in Jacqui who in a caring and loving manner, reminded me again of the overall benefit of having the operation. So, although it will be a little sad if the procedure has no immediate effect on Sam's thumbs, it does mean that they should not become any more angulated with age, which is what they were doing before.
So, we go back to the OT's on Monday just for them to do a quick check-up on the splints they made at our last appointment (which was obviously done under rather traumatised conditions) and then back to Dr Carter again for the removing of the wires on the 12th July. Yaaahhh! Sam is just not loving having to suck on the splint, although he has kind of settled on that for now. Chris suggested we go buy a cheap doll somewhere, cut off the thumb and attach it to the splint so that it might feel a bit more authentic for when Sam's sucks it, but it all seemed a bit too "Chucky-like" for me. One good thing about having the bandages off is it's far easier to go out in public. You won't believe the looks we'd get from people, walking around with this tiny little baby, completely bandaged up to his elbows. I was so close to just printing out a little note and attaching it to Sam saying "Please Note - the infant attached to this notice has undergone necessary hand surgery in order to rectify the angulation of his thumbs due to his having Rubinstein-Taybi Syndrome and has in no way been abused or mistreated by his parent/s. For further confirmation kindly contact Dr Carter at Life Vincent Pallotti Hospital or kindly soften the accusing look on your, otherwise, friendly face." For once, Samuel being so tiny was an advantage because with that note attached to him, passersby would instead be walking around bewildered thinking "Infant? What infant? All we see is a piece of paper being carried around like a baby by some dodgy little woman."
Other than that, the holidays are dragging drearily by but we have Father's Day to look forward to on Sunday as well as Sammy's Granny from Pearly Beach coming down for a visit. We haven't seen her since December so it will be great to catch-up and for her to see how much Sammy has grown.
And, on that note - a word from our sponser (or rather a look) - the one, the only, the exhausted (from yet another day with less than 20 mins napping).......SAM THE CONQUEROR! (Can't you just see how full of life and laughter he is by the time it gets to late afternoon).