Sam. Conqueror. Overcomer.

On the 15th May 2009, Samuel Christian made his way into this world...two month's premature and in severe respiratory distress. Within hours, Sam was diagnosed with Rubinstein-Taybi Syndrome - a very rare congenital disorder, of which little was known. The diagnosis together with the immediate challenges Sam faced to thrive became our core focus and it was with joy and thankfulness that we eventually brought Sam home, after nine weeks in the NICU.

As time pressed on, it became obvious that Sam's development was falling behind that of his RTS peers. Shortly before his 5th birthday Sam underwent a brain scan and it was confirmed by a paediatric neurologist that in addition to Rubinstein-Taybi Syndrome, Sam also has Cerebral Palsy related to his premature birth, as well as Autism.

This blog chronicles our journey through these challenges...
Our world has crashed, been blown apart.
This can't be happening....why us? Why now?
Your fragile life shaken before it could barely start,
How do we get through this...please, Lord, tell us how?

Drowning in our sorrow, waiting for answers that just don't come.
Our baby "special needs"? It simply can't be true!
The heartache overwhelms us, we're left feeling cold and numb.
The diagnosis tells us little - these children are so few.

But then we finallyget to touch you, to see your precious face
And all the heartache and questions fade, replaced with love and pride.
It's obvious from the very start you're showered in God's grace,
And with His love and guidance, we'll take this challenge in stride.

When once we couldn't pronounce it, Rubinstein-Taybi's become our norm.
When once the future seemed dark, we now welcome the journey as having an RTS angel brings lessons in unexpected form.

Our world has crashed, been blown apart!
This IS us.....right now!
We've been blessed with a gift, so precious from the very start. How do we get through this? Here's how.....
By believing in a God, so merciful and great,
By trusting that He's right beside us as we journey through the narrow gate.
By believing His love for us is not determined by a human frame,
By trusting that we draw Him near by merely calling His name. This precious baby we asked God for,
Prayed he'd be perfect and complete.
And, as Samuel means "God hears", He's laid His answer at our feet.

(Nicky de Beer : 27/05/2010)

Friday, June 25, 2010


"A joyful heart makes a face cheerful, but a sad heart produces a broken spirit."
Prov 15:13

Dr William Barclay says : "We may put it this way - whatever the ingredients of Christian experience and in whatever proportions they are mixed together, joy is one of them."

Selwyn Hughes writes : "Joy is always present in the heart of a Christian. It may not always be felt or recognized - but it is always there. And eventually it will break the surface, no matter what our situation or our circumstances. I have always maintained that joy is an inevitable part of the Christian life. Now I am sure. Oh, so very sure."

Just a little something for my JOYful Smurf who, no matter what he is going through, remains full of joy and life, full of eagerness to live and experience, full of love and acceptance. He is one of the most wise beings I know, wise in how he teaches us one of the most fundamental characteristics - JOY!

Another wise person I know is Noah's mommy, Kristi who handled a very sensitive situation in an awesome way.

The tongue of the wise makes knowledge attractive, but the mouth of fools blurts out foolishness." Prov 15:2

SH writes that we become what we say.....we become the incarnation of what we express.

"If it is true - and I believe that it is - that we become the incarnation of what we express, then how careful we ought to be to ensure that what we say is guarded and governed by truth, integrity and kindness. Always remember : every word you utter becomes flesh - in you."

Check out the link to Noah and Kristi's blog - THE ADVENTURES OF NOAH AND NICK

P.S. All is well with Sammy's wound on his right hand. After some confusion with how to be taking care of the wound until the hand specialist is back from leave, we took him to our family doctor who redressed the wound and made sure that everything is okay (which it is, in fact the wound looks really great). So we are all smiling!!!

1 comment:

  1. thats great that he is healing just fine! great news! =)