Sam. Conqueror. Overcomer.

On the 15th May 2009, Samuel Christian made his way into this world...two month's premature and in severe respiratory distress. Within hours, Sam was diagnosed with Rubinstein-Taybi Syndrome - a very rare congenital disorder, of which little was known. The diagnosis together with the immediate challenges Sam faced to thrive became our core focus and it was with joy and thankfulness that we eventually brought Sam home, after nine weeks in the NICU.

As time pressed on, it became obvious that Sam's development was falling behind that of his RTS peers. Shortly before his 5th birthday Sam underwent a brain scan and it was confirmed by a paediatric neurologist that in addition to Rubinstein-Taybi Syndrome, Sam also has Cerebral Palsy related to his premature birth, as well as Autism.

This blog chronicles our journey through these challenges...
Our world has crashed, been blown apart.
This can't be happening....why us? Why now?
Your fragile life shaken before it could barely start,
How do we get through this...please, Lord, tell us how?

Drowning in our sorrow, waiting for answers that just don't come.
Our baby "special needs"? It simply can't be true!
The heartache overwhelms us, we're left feeling cold and numb.
The diagnosis tells us little - these children are so few.

But then we finallyget to touch you, to see your precious face
And all the heartache and questions fade, replaced with love and pride.
It's obvious from the very start you're showered in God's grace,
And with His love and guidance, we'll take this challenge in stride.

When once we couldn't pronounce it, Rubinstein-Taybi's become our norm.
When once the future seemed dark, we now welcome the journey as having an RTS angel brings lessons in unexpected form.

Our world has crashed, been blown apart!
This IS us.....right now!
We've been blessed with a gift, so precious from the very start. How do we get through this? Here's how.....
By believing in a God, so merciful and great,
By trusting that He's right beside us as we journey through the narrow gate.
By believing His love for us is not determined by a human frame,
By trusting that we draw Him near by merely calling His name. This precious baby we asked God for,
Prayed he'd be perfect and complete.
And, as Samuel means "God hears", He's laid His answer at our feet.

(Nicky de Beer : 27/05/2010)

Sunday, July 11, 2010

Just to let you know

You have clouded our way with obstacles,
Have thrown at us all that you can,
And continue to hunt our souls,
Attempt to turn us away from the Creator of man.
And, yes...there are times when we falter, when we think yours is the easier way,
When our voices struggle to shout to you FROM GOD'S PATH WE WILL NOT STRAY.

Our enemies rise against us,
Blood rich with your enchanting darkness.
The constant battle begins to wear us down,
Fills our hearts with sadness.
But through the thoughts of worry and despair, a messenger delivers this verse
That reminds us to focus our thoughts on the heavenly and not the perverse.

"Whatever is true, noble, right, pure, lovely, admirable -
If anything is excellent or praiseworthy - think about such things."

So we close our eyes and take a deep breath,
Knowing what lays ahead.
Then we say a prayer and stand up once again,
With a smile this time instead.
Now we'd hate for you to waste your time,
So thought it best just to let you know,
That our hearts are strong and our faith is our shield
(Nicky de Beer : 11/07/2010)


  1. Very very profound words my girl you are such a wonderful writer when are you going to have this published on line........could get a big surprise. Love the way you think

  2. it is very nice and you are a wonderful writer.good luck with mr de Beer sr and mr de Beer jnr today

  3. Your way we will not go - indeed and amen!

    Powerful and poignant!

  4. Amen, Nicky! Beautifully said.