...I must remember to blog about this and I must remember to blog about that. And then I don't. Blog or remember, not necessarily in that order. But I was adament I would blog tonight, so blog I will...even if there's nothing of particular interest in the post.
So, matter of no particular interest No. 1 : Sam has a lovely, white "spot"on his tonsil. It's been there for some time, just nowhere near as big as what it is right now and from what my good friend, Dr Google says, it's not going to be getting smaller on it's own...or with assistance. #sigh There are also signs that the little smurfy dude might be coming down with something. Meg is slowly getting over a bad case of something nasty and Brampies has just picked up that something nasty so I guess it's inevitable that Sam will be welcoming the something nasty into his system any day now. He's already not eating or drinking quite the same and fiddling non-stop in his mouth. Oooohhh, I just remembered one of the blog items to remember. At Sam's previous physio session he suddenly started scratching frantically in his mouth, particularly on his tongue. Both Heidi and I were a little taken aback and I watched him like a hawk after his PT session as I was sure then already that he must be starting with a sore throat. Luckily it never happened again that day, or for the rest of that week either. The very next PT session it happened again! Within minutes of starting Sam was going frantically at his tongue. Have you ever heard of anything so strange? I know Sam doesn't always love physio but this brings a whole new meaning to the saying "it leaves a bad taste in the mouth" :/
Ah, another blog item to remember...my good friend, Marili (mommy to Sam's horse-riding partner, Antoni), introduced us to a wonderful group of ladies who belong to Iris House Childrens Hospice (I know I mentioned them in my last blog). Anyway, a couple of weekends ago we received an invite to the opening of a new McDonalds for Meg and Sam. Meg unfortunately could not make it, but we went along with Sam and had so much fun.
Being out in public with folks who are not going to stare at Sam's flapping/humming/spinning or look on in obvious disapproval at our ill-behaved and probably undisciplined little boy's "tantrums" when Sam has a meltdown, sure is a new and refreshing experience. We received another lunch invitation this afternoon to celebrate Mandela Day as a treat by a restaurant in a local shopping centre next Thursday. Of course I RSVP'd straight away and cannot wait to meet more of our new Iris House Family.
Even though we're meant to be in the throws of Winter here in South Africa, we have been blessed with some really wonderful weather which absolutely cannot be wasted staying indoors. We're fortunate to live just minutes away from a lovely little dam/pond and enjoyed a glorious walk there yesterday afternoon. I so understand the precarious situation our low dam levels might be leading us into here but, man-oh-man, I do so love warm, sunny days...so at the risk of getting shot down by my environmentally-cautious friends (Brampies being one in particular who literally cringes every time I say this)...bring on Spring!
Aaahhh...the good old days when Sam still napped (even if just for 20minutes) during the day. Although taking a look at that smile, you'd think he'd slept for a good hour or two. Daytime naps have, quite sadly, become a thing of the past with Sam which brings a whole new meaning to "suicide hour(s)" in this household.
I know I wanted to mention that I'd seen the odd post on Facebook over the past week or so about a couple of Sam's RTS siblings being subjected to unkindness and, I guess more accurately, discriminatory behaviour simply because of their being differently-abled and I had fully intended to have a quick quirp on this but, frankly, I am too tired. And even if I wasn't, would it really make a difference? The sad truth is so many people judge others by how they look, how they perceive their behaviour and manner, what value that individual can bring into their own shallow lives. Ít's not something that's going to miraculously remedy itself. The refreshing truth though is that there are still enough kindhearted spirits wondering around, who see passed a diagnosis and special needs, to give one hope and the strength to carry on. xox