In hindsight, I should have afforded the SPD the research and knowledge it required. I can't help but wonder if I'd taken the time then, I might not have made more informed decisions about how I care for Sam. For a long time I have presumed that almost all Sam's challenges are purely RTS related so started feeling a little puzzled as I watched several of Sam's younger RTS peers recently mastering many wonderful milestones. Not comparison....merely observation. We were still reeling in the celebration of Sam's walking progress, the blog post barely published before it all came to a sudden halt. Not only does Sam now avoid his walker like the plague, but he is back to his normal petrified self...he won't even stand propped up against my legs without arching his back and throwing his arms up in fear. One morning this past weekend we watched Sam, first with amusement, trying several times to manipulate his bottle into his mouth. The amusement was quickly replaced with something less pleasant as it took Sam, at the very least, 10 attempts to successfully bring the bottle to his mouth. His struggle to co-ordinate his arms, hands and mouth was really obvious and quite strange because he seems to more easily grasp the finer motor tasks like building puzzles or gripping a pencil. Anyway, this time there's no blog-induced, light bulb moment. No suddenly remembered bathroom pirouettes which ended in a bloody lip and traumatised regression, no painful surgeries being performed on my watch, no ironingboard-like drops to the floor...heck, I've been watching the kid like a hawk (well as hawk-like as your eyes can be at almost 40) and nothing sensational has happened to cause this current regression. So I joined an SPD Group (or two or five) on Facebook, which has been hugely therapeutic...corresponding with other parents who completely "get" your child's behaviour and associate it with the sensory challenges the kids face, as opposed to presuming that spoilt behaviour and manipulation is mostly the problem, is huge....HUGE!
I finally went out and bought a copy of Carol Stock Kranowitz's "The Out of Sync Child"' in the hope that I can try and sync this sinking regression...although the book has now found its way to the pile of dvd's, web links, documentaries etcetera etcetera I've been trying to work through for some time now. It defintely needs to stay at the top of my To Do list...uhhm, or somewhere close to the top at least.
A while ago, before Sam's walking progress, Sam's OT mentioned the possibility of a wheelchair to me, for Sam. It's largely the motivation behind me suddenly pushing Sam on the walking issue (mmm...could this be THAT lightbulb moment...too much pushing? Nope, me thinks not). The thought was a little saddening, especially because Sam's orthopaed doesn't feel any of Sam's physical issues should prevent him from walking. But nevertheless, after some dodgy incidents with me trying to get Sam into and out of trolley seats while on my own, we spotted a wheelchair which looked like it would suit Sam quite nicely...and went ahead and bought it. There might have been a tear or two shed on the way to the car but then it was time to just suck it up, accept that it's not the snuffing out of hope but merely an adjustment of what to hope for. By now we've used the wheelchair many times and it works so much better than a trolley or pram. Sam sits higher so there's no fear involved when walking through a shopping centre with loads of people whooshing passed him and it handles really well with just one hand.
In the iFix store - getting the iPad's screen repaired yet again, 2nd time in 8 months.
Ouch! Lots of dazzling lights though.
And some random pics to catch up with the more trivial smurfy news :
Apparently colouring is really hard work and requires regular naps throughout
I saw this really cool swing idea on the SPD page, so gave it a bash...and?
Apparently Sam feels quite comfortable in his little cocoon :)
We celebrated Mia's 1st birthday
And, yip, the kid still luvs his swinging.